I have been a caregiver. For years I managed the care of my father through a long and complex illness, navigating doctors, hospitals, and a healthcare system that doesn’t always make it easy to get the help you need. I learned what it feels like to fight for someone you love inside a system that wasn’t designed to prioritize the needs of the most vulnerable.
Then I became the patient. In 2023 I was diagnosed with sarcoidosis, a chronic autoimmune disease that would eventually take me from CrossFit athlete to needing a cane in under a year. I learned what it feels like to be dismissed, to be told you are stable when you know you are not, to have to fight for your own care with whatever energy you have left.
That is why I founded Beyond the Flare, a publication about chronic illness, self-advocacy, and the fight for proper treatment. And it is why everything I build now carries a question: whose life does this actually touch?